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Click here to have a look
PainFriends.com is an
organisation that has been developed to cater for
the social needs of:
-
Sufferers of
chronic fatigue syndrome and/or chronic pain;
-
Carers of these
chronic pain and chronic fatigue sufferers; and
-
Health Care Professionals.
A joint venture
between The Gideon Lang Research Foundation and JSP
Webtech has pioneered this new website.
Features for Members
Far
more than just another medical resource, this
high-tech site also caters to social and
psychological needs, providing online chat, personal
messaging and much more, such that sufferers and
their carers can develop their own support
community.
The idea is to have a
high-tech support site with peer-to-peer chat that
is fast, efficient and user friendly; a site
designed to efficiently manage a massive member
database such that anyone in the world can log-on,
find other sufferers and carers of chronic pain and
chronic fatigue, chat computer-to-computer within
minutes, have a forum to view their ideas, thoughts
feelings, stories and upcoming events, as well as
having the ability to search for relevant medical
and health documents.
Members will be able
to search the database for others with similar
interests or afflictions.
The search criteria will be based on the
needs of sufferers as well as their carers,
utilizing detailed profiles, preferences and photos.
This is seen as the key success factor for the
website, as many sufferers of CFS are house bound
and an outlet or pen-friend such as that provided by
PainFriends.com would significantly improve the
quality of their lives. Additionally, sufferers and
carers will have the ability to search for and
communicate with health care professionals.
An online documents
and research section will be a major part of
PainFriends.com. All financial members will have
access to two types of documents:
1. An
open forum where any member can post unqualified and
non researched material that will provide
information based on the member’s own experiences
and opinions. A disclaimer will be displayed,
stating that the views of the individual member that
posted the article are not necessarily the views of
the foundation or of PainFriends.com.
2. A
database of researched medical and health journal
articles and documents that contain relevant,
appropriate and accurate information.
PainFriends.com’s
primary appeal is that once the member has paid
their membership fees, there will be no upgrade in
membership costs in order to get more information or
access to different sections of the site, as is the
case with a number of other sites. Once a member has
logged in to the site and paid the initial
membership fees all barriers and limitations are
removed. This aspect is seen as paramount to the
satisfaction of PainFriends.com members.
Finally, a feedback
section will be included in order to ensure that the
site continues to meet the needs and expectations of
the members. This is also put in place to ensure
members’ satisfaction.
In summary
PainFriends.com members will be able to perform the
following functions:
-
1-to-1
Online Communication –
sufferers and carers will be able to communicate
using personal messages and e-mail;
-
Online
Forums – any member
can post unqualified and non researched material
that will provide information based on the
member’s own experiences and opinions;
-
Chat
Rooms – where members
can log on for online real time conversations
with other members;
-
Special
Events – members will
be able to post, invite and accept invitations
to special events being held in their local
areas by other members and health care
professionals;
-
Conduct
research via medical
reference data supplied by the University of
Newcastle;
-
Order
health supplies -
vitamins, minerals and amino acid packs can be
ordered online for home delivery;
-
Useful
Links section – a
directory of other websites that relate to
chronic fatigue syndrome, chronic pain, pain
management or any other relevant or interesting
sites; &
-
Contact
health care professionals.
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